Frontotemporal Dementia Care at Home

While most people have an idea of what dementia is and the symptoms it can cause, many may not know that there are varying types of dementia which affect different parts of the brain. The most common type is Alzheimer's Disease which is characterised by a gradual decline in memory and other cognitive abilities.

Other types include vascular dementia, which is caused by reduced blood flow to the brain that can occur after a stroke or other condition that affects blood flow to the brain, and Lewy body dementia, which can cause hallucinations, sleep disturbances and other symptoms.

Then there’s frontotemporal dementia, which is characterised by changes in behaviour, personality, and language abilities. The Hollywood actor Bruce Willis has recently been diagnosed with frontotemporal dementia and has immediately retired from his acting career as a result.

Bruce Willis’ diagnosis has bought a lot of attention to this lesser-known type of dementia, so we’ve put together this blog to help you understand what frontotemporal dementia is, the signs to be aware of and the kind of dementia care at home that can be sought if you’ve been affected by it.

What is Frontotemporal Dementia?

Frontotemporal dementia (FTD) affects the frontal and temporal lobes of the brain. These parts of the brain are responsible for controlling behaviour, emotions and language, meaning FTD can have a devastating effect on the personality of the sufferer.

FTD is caused by the degeneration of nerve cells in these lobes, leading to their gradual loss of function. This degeneration can occur due to a variety of underlying causes, including genetics, environmental factors or a combination of both.

FTD is a more uncommon type of dementia according to the NHS and is usually diagnosed at a younger age than other types. Most cases are recorded in people between 45 and 65 years of age, and it is the leading cause of dementia in this age group.

While care for dementia in the elderly is common, it is not the only age group that may need dementia care at home. Bruce Willis was 67 when he was diagnosed with frontotemporal dementia in February 2023. He had been showing symptoms for several years prior and was initially diagnosed with aphasia in March 2022.


What are the Symptoms of Frontotemporal Dementia?

Symptoms of frontotemporal dementia vary depending on which areas of the frontal and temporal lobes are affected, but they typically include changes in personality, behaviour and language. Some common symptoms include:


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  • Changes in Personality: A person with FTD may become socially inappropriate, apathetic or disinhibited, losing interest in activities they previously enjoyed and becoming withdrawn.
  • Language Difficulties: People with FTD may have difficulty finding the right words or grammar, struggling with comprehension and not following conversations.
  • Behavioural Changes: People with FTD may exhibit compulsive, repetitive or socially inappropriate behaviours like stealing or hoarding, and may struggle with impulse control
  • Movement Difficulties: Some people with FTD may experience movement difficulties, such as stiffness or tremors, which can be mistaken for Parkinson's disease.
  • Problems with Executive Function: FTD can also affect a person's ability to plan and organise, make decisions and solve problems.

FTD can be difficult to diagnose, and many people may be living with the disease without realizing it. If you or a loved one are experiencing any of these symptoms, it is important to seek medical advice/attention to determine the cause and receive appropriate treatment.

FTD is a progressive disease – it gets worse over time – and there is currently no cure. Treatment focuses on managing symptoms and improving the quality of life for the individual and their family. This may involve medications, various forms of therapy and support services such as dementia care at home.

How Do You Care for Someone with Frontotemporal Dementia?

As the disease progresses, people with frontotemporal dementia will require increasing levels of care to manage their symptoms and maintain their quality of life. Specific care will vary on a case-by-case basis, but here is an overview of the types of care that need to be considered:

Medical Care: People with FTD should have regular check-ups with their GP to monitor their condition and manage any related health issues. Medications may be prescribed to help manage some of the symptoms, such as antidepressants, antipsychotics, or mood stabilisers.

Behavioural Management: It is important to have a structured environment and a consistent routine to reduce confusion and agitation. A care package may need to implement strategies to manage challenging behaviours such as aggression, impulsivity or wandering.

Communication Support: FTD can affect language and communication skills, so people with FTD may need help expressing themselves and understanding others. Carers can use visual aids, simplified language and non-verbal cues to facilitate communication.

Personal Care: As the disease progresses, people with FTD may require help with their daily living activities, such as bathing, grooming, dressing and eating. Carers should help as needed while respecting the person's dignity and autonomy as much as possible.

Emotional Support: FTD can be a challenging and isolating experience for both the person with the disease and their carers. It is important to provide emotional support and social interaction to help maintain a sense of connection and well-being.

It can help to engage in meaningful activities, like connecting with others who are going through similar experiences, and seeking professional counselling if needed. There may be a point when you need assistance with care, which is why Mayfair Care Agency provides private dementia care at home services that include care for dementia in the elderly, and for anybody needing care for frontotemporal dementia.

Does Dementia Care at Home Have Benefits?

Being cared for at home can be greatly beneficial for individuals with frontotemporal dementia. Many people with dementia prefer to remain in their own homes as they age, as this can provide a sense of familiarity, comfort and security. Additionally, dementia care at home allows for a more personalised and flexible care plan that’s bespoke to each individual.

Private dementia care at home can also provide a sense of continuity and consistency for individuals with dementia, as they can receive care from the same carers on a regular basis. This can be particularly important for individuals who experience anxiety or confusion in unfamiliar settings.

Caring for someone with FTP at home can be challenging for family members who may have to juggle caring responsibilities with work and other obligations. Private dementia care at home will significantly lighten the load on family and friends. At Mayfair, our dedicated carers are adept at providing all the necessary care needed in dementia patients while adapting to the person's habits and way of life to preserve their quality of life.

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Ultimately, the decision to provide dementia care at home should be made by considering the individual's needs, preferences and existing support system. It is important to consider all available options and seek professional advice to make the best decision for everyone involved.

Dementia is a terrible disease, but at Mayfair, we are here with you every step of the way as you come to terms with the diagnosis of yourself or a loved one. If you need more guidance on the possibilities of private home care services or would like to further discuss your situation, please give us a call on 01386 41492 or email

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